I decided a long time ago that I didn’t have the energy for the tap dancing that bowing to stigma requires. This wasn’t a bold or noble move on my part. It was the need for efficiency. The stress and maintenance of this circus requires everything I’ve got. Superfluous activity and emotions are discarded to make room for problem solving.
But as I navigate the waters of our overburdened and underfunded mental health system, there is a wall I keep butting up against. It is a specific limitation which needs to be addressed: Why does the medical establishment seem to stop caring about schizophrenia once the patient is medicated and compliant?
What a mystery, this thing, mental illness. But what exactly is the critical issue? Just how horrible it is? How ugly, how dehumanizing? Or is it something more intricate, more profound than that? A thread throughout the historical narrative of this disease is that the afflicted one believes he is talking to God. Or God is talking to him.
“Officer, my son has schizophrenia and seems to have taken too much medication. He is not violent, or dangerous. He has never hurt anyone. He needs to go to the hospital.”
Right now, we all find ourselves at the shore of an unknowable ocean. The virus sweeping our planet threatens to change everything we once held as true. But this truth doesn’t change: without love we are lost.
Let us move forward from here.
What have I done, with my weakness and my pain? I have hurt him.
I consider the histories of the mentally ill. So often they are artists, with a sensitivity to see beauty and connectedness in the world that the rest of us don’t recognize. Perhaps that heightened sensitivity makes them more susceptible to these illnesses. Their exquisite brains are easy targets, like little bunnies, so vulnerable.
I am thankful I am alive. I want to give back. I have learned to love me. So I have learned to love the people around me. Never ever give up. Every hard step taught me something. So it WILL do the same for you. I am grateful for my life. I have added value to the lives of people around me. SO WILL YOU.
In ancient civilizations the people who behaved like those we now label schizophrenic were regarded as visionaries. Shamans. A circle was drawn around them in which they could live, respected, within the existing society to which they weren’t suited. A circle. Nick has a red diamond on his right wrist, covering his suicide scar. A tattoo over a scar. But isn’t the white line of the scar really just a tattoo as well?
This is one story about our experience with the mental healthcare system. I have too many stories to count and our experience has not yet ended, it never will but hopefully it will get better. For two years I have stayed very silent about our struggles, a few close family members and friends know but overall no one would have any idea what we have been through. In part because I didn’t want my family or my daughter to be judged.
