We are privileged to share blog postings from our Ambassador Jessie Close, Adrienne Gurman, Henry Boy Jenkins, and other guest bloggers. Please visit regularly as our content will be updated often.
A friend of mine is concentrating her graduate studies in drama therapy and is currently assembling a seminar on schizophrenia. When asked if I would like to contribute, I happily obliged. She wanted an excerpt from my unpublished manuscript to read in her presentation, so I opened up the file and started combing through it, searching for an excerpt that would most accurately convey my lived experience.
But as I navigate the waters of our overburdened and underfunded mental health system, there is a wall I keep butting up against. It is a specific limitation which needs to be addressed: Why does the medical establishment seem to stop caring about schizophrenia once the patient is medicated and compliant?
Considering that I lived in a world of my own, replete with sights and sounds that manifested sparkles and colors by the nature of my young life on the spectrum, that was enough for me. While the rest of the year held little intrigue if there wasn’t a parade or Frisbee in sight, Independence Day always delivered.
Like millions of other people whose only connection to the life we might have known once is an online conference call or video chat where a familiar face is only that and nothing more. No actual contact, no handshakes or hugs, no fascia or pheromones. Something’s missing. Something human.
What a mystery, this thing, mental illness. But what exactly is the critical issue? Just how horrible it is? How ugly, how dehumanizing? Or is it something more intricate, more profound than that? A thread throughout the historical narrative of this disease is that the afflicted one believes he is talking to God. Or God is talking to him.
I have a different perspective on life today. I’m less concerned with being normal and more enthusiastic about the integration that medication and wellness has afforded me. My self-conscious behavior and subsequent social awkwardness seem to have waned; life feels more easily manageable. My confidence has returned to a degree that I felt compelled to meet new friends, and with new territory to explore, I feel inclined to take chances that I wouldn’t have—or couldn’t have—when I was living in psychosis.
Go easy on yourself and hopefully when life goes back to normal for many of you, you will find a new understanding, compassion, and appreciation for every level of human functioning.